Tinnitus sufferers

[PoodlesAgain]

I recall that we are a few tinnitus sufferers here.

One another forum, it was mentioned by two posters that, after getting hearing aids, their t was drastically more bearable, an unexpected effect.

It may not be news to some, or just anecdotal, but I just thought to share the tidbit.

Side note: I have yet to get fitted with badly needed hearing aids. When listening to our Samsung TV internal speakers, I get this unique intermittent low crackling, quite entertaining.

[uwmcscott]

I have pulsile tinnitus ( hearing your heartbeat in your ears ) along with garden variety. Most likely a result of multiple ear infections/eardrum scarring as a child.

Usually I don't notice unless someone brings up the topic Not to the point of needing hearing aids yet, but if I do and it helps with the tinnitus that would be a bonus.

[jtcnj]

Mine started hissing when I started reading this thread!!

[Lamf77]

Mine started hissing when I started reading this thread!!

Can you type louder please......

Sent from my Pixel 3a XL using Tapatalk

[Spike]

Mine started hissing when I started reading this thread!!

Ha! Same here.

[PoodlesAgain]

I have pulsile tinnitus ( hearing your heartbeat in your ears )

Ah, that is the name of this.
I came to like mine, and extra "feature reminding me I am still alive!

[OMB]

Tinnitus and significant hearing loss. Just a couple more things to deal with in my golden years. I have had the tinnitus since 1972...

[mickey]

What?
I can't hear you for this ringing in my ears?

[thepezident]

I've had it since early 90's.
Stood right in front of main speakers at a Ramones show.
It felt soo cool to feel my organs vibrate from the volume.......
I'll be paying for that for the rest of my life.
Left the show and the ringing never stopped.

I am close to NY and there are a couple studies being done.
I've thrown my name into the hat but have not heard anything...
That was last year.

Sometimes, it really gets me depressed.
I remember maybe Nick in the States has it also...

Or who did he get together with...maybe it was that guy....It was someone from the Boston area I thought.....

[ronnx]

What did you say?

[Mossman]

I've had tinnitus since 2007. Nothing really triggered it... I wasn't playing in a band at the time, or had been to a concert, or subjected to any loud noise. I just woke up one morning with ringing in my ears and it never went away. It wasn't bad at first, but I kinda freaked out about it and booked an appointment with an ENT specialist. Got my hearing tested and I didn't really have any significant hearing loss. Nothing beyond what was normal for my age, anyway, and the ringing was pretty easy to ignore, but it's gotten louder and harder to ignore as I've gotten older, and more of those high frequencies have slipped away. Even still, I'm not conscious of it all the time. The only time it seems really loud is when I'm in a silent room, and even then, if my mind is occupied with something, I don't really notice it. I can sit at my computer, or work on guitar projects in silence for hours, and I'm not conscious of it... until I'm conscious of it. My emotional state can make it worse, though. If I have anxiety, or I'm angry, it can sound like a jet engine.

I've tried using all kinds of apps that are designed to mitigate the ringing but none of them seem to have any long term effect, and I can't walk around listening to white noise all the time. Other apps require you to match the frequency of your tinnitus, but that's not as easy as it sounds, and I have tinnitus in more than one frequency. I have been using a noise generator when I go to bed, though. It doesn't completely mask the ringing, but white noise has the added benefit of making you sleepy. It knocks me out within minutes, and I haven't had any trouble falling asleep since I started using it.

I've always known that hearing aids can help with tinnitus, but I don't really have any noticeable hearing impairment. I don't need to crank the volume on the TV, or have any trouble understanding speech... even in noisy environments. My hearing has always been very detailed, and despite my higher frequency loss, I can still hear subtle things that other people can't seem to hear, so the thought of using hearing aids at this point seems like over-kill to me. I was initially afraid that the tinnitus would affect my pitch perception as it got louder. I don't have perfect pitch, but I have very good relative pitch, and that hasn't failed me yet.

Whenever I start feeling sorry for myself about my tinnitus, I think of Beethoven. Not only did he go stone deaf, but he had tinnitus to boot. The ONLY thing he could hear was the ringing in his head, and there was nothing that could be done to distract him from it, or offer any relief.

[Chocol8]

I have pulsile tinnitus ( hearing your heartbeat in your ears )

I imagine it would be pretty scary if that suddenly went away!

[Bullcat]

Got mine in 2010 from a fire engine air horn.

[Jaymo]

Mine showed up in 2015, after a bad double ear infection.
Mine goes "EEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE".
Not a fan. I miss silence

[SamIV]

My wife is suffering from pulsatile tinnitus. Hers is so loud at times she just goes to bed and lays there. Sometimes for days. She has been suffering with it for years, but the worst of it has been since Jan of this year. We have seen too many specialists to count. Flew to NY last month to see a world renowned physician in this field, only to find out she was not a candidate for the surgery he provides.

We are still on the hunt to figure this out. It has pretty much consumed our lives to try and figure this out. Can’t figure out what truly triggers it. We know salt is an issue. She is on a 1500 mg daily sodium diet. She has a few good days. She has changed BP meds so many times as well to help combat it. Some better than others. The meds we know contribute but also help. Still in the fight, but don’t know if it will ever be resolved for her to have a normal life again. And she wears hearing aids which does provide some relief. Not going to give up trying though.

[redman]

Have had it for a few years sometimes much worse than others.

[Buddha Pickups]

Bilateral eustachian tube disorder here.
Thought I had pulsatile tinnitus in my R ear but turns out it's my eustachian tube going crazy. The fluttering in my R ear is not in tandem with my pulse.
I also thought at one point it may be myoclonus (malfunctioning ear muscles) but the last ent seemed pretty positive it's my eustachian tube.
Unfortunately the procedure to fix my ear is not covered by insurance at this time.

[MichaelR]

Laying between two large speakers listening to Jimmy Hendrix got my left ear drum and firing my 45 to close to a flat boulder got the right one. Its a constant ring for me but I have learned to ignore it.

[Rollin Hand]

Superior canal dehiscence here. I get ringing, and sometimes reverb along with other issues.

Not worth the surgery to fix it though. They go in through the skull.

[nomadh]

Mine doesnt usually bother me until I try to sleep them I need some sort of sound on. Music usually keeps me awake strange enough but talk radio or a good radio mystery usually works.